Architecture Enabling Service-oriented Digital Biobanks Hyysalo, Jarkko Keskinarkaus, Anja Harper, Gavin Sauvola, Jaakko 2016-12-29T01:20:13Z 2016-12-29T01:20:13Z 2017-01-04
dc.description.abstract In Finland, the Biobank Act entered into effect in 2013. The primary motivation for the act is to enable the utilization of collected biological sample material for medical research. However, in order to effectively utilize this data, there exists a need to develop new technological solutions to support the collection and management of potentially large sets of sensitive data through multiple stages of processing. The cumulative data stored within biobanks will enable multi-disciplinary research and new innovations. We propose an architecture that addresses several challenges involved in defining and deploying a biobank infrastructure including consent management, data management and data transfer. Our architecture expedites the development of this important area within the research and industrial communities, and enables the deployment of service-oriented biobanks.
dc.format.extent 10 pages
dc.identifier.doi 10.24251/HICSS.2017.420
dc.identifier.isbn 978-0-9981331-0-2
dc.language.iso eng
dc.relation.ispartof Proceedings of the 50th Hawaii International Conference on System Sciences
dc.rights Attribution-NonCommercial-NoDerivatives 4.0 International
dc.subject Architecture
dc.subject biobank
dc.subject sensitive data
dc.title Architecture Enabling Service-oriented Digital Biobanks
dc.type Conference Paper
dc.type.dcmi Text
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