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Data Sovereignty in Data Donation Cycles - Requirements and Enabling Technologies for the Data-driven Development of Health Applications

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Title:Data Sovereignty in Data Donation Cycles - Requirements and Enabling Technologies for the Data-driven Development of Health Applications
Authors:Schinle, Markus
Erler, Christina
Stork, Wilhelm
Keywords:Ubiquitous and Comprehensive Healthcare: Expanding Technologies and Systems to Enable New Delivery Models
data donation
data-driven medicine
data mobility
data sovereignty
show 1 morepersonalized healthcare
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Date Issued:05 Jan 2021
Abstract:Personalized healthcare is expected to increase the efficiency and the effectiveness of health services using different kinds of algorithms on existing data. This approach is currently confronted with the lack of digital data and the desire for self-determined personal data handling. However, the issue of health data donation is on the political agenda of some governments. Within this work, a knowledge base will be created by reviewing existing approaches and technologies regarding this topic with the focus on chronic diseases. A list of requirements will be derived from which we conceptualize a data donation cycle to demonstrate the challenges and opportunities of health data sovereignty and its future possibilities concerning data-driven health application development. By linking the requirements to technological approaches, the baseline for future open ecosystems will be presented.
Pages/Duration:10 pages
URI:http://hdl.handle.net/10125/71098
ISBN:978-0-9981331-4-0
DOI:10.24251/HICSS.2021.482
Rights:Attribution-NonCommercial-NoDerivatives 4.0 International
https://creativecommons.org/licenses/by-nc-nd/4.0/
Appears in Collections: Ubiquitous and Comprehensive Healthcare: Expanding Technologies and Systems to Enable New Delivery Models


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