Data Sovereignty in Data Donation Cycles - Requirements and Enabling Technologies for the Data-driven Development of Health Applications

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dc.contributor.authorSchinle, Markus
dc.contributor.authorErler, Christina
dc.contributor.authorStork, Wilhelm
dc.date.accessioned2020-12-24T19:49:23Z
dc.date.available2020-12-24T19:49:23Z
dc.date.issued2021-01-05
dc.description.abstractPersonalized healthcare is expected to increase the efficiency and the effectiveness of health services using different kinds of algorithms on existing data. This approach is currently confronted with the lack of digital data and the desire for self-determined personal data handling. However, the issue of health data donation is on the political agenda of some governments. Within this work, a knowledge base will be created by reviewing existing approaches and technologies regarding this topic with the focus on chronic diseases. A list of requirements will be derived from which we conceptualize a data donation cycle to demonstrate the challenges and opportunities of health data sovereignty and its future possibilities concerning data-driven health application development. By linking the requirements to technological approaches, the baseline for future open ecosystems will be presented.
dc.format.extent10 pages
dc.identifier.doi10.24251/HICSS.2021.482
dc.identifier.isbn978-0-9981331-4-0
dc.identifier.urihttp://hdl.handle.net/10125/71098
dc.language.isoEnglish
dc.relation.ispartofProceedings of the 54th Hawaii International Conference on System Sciences
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectUbiquitous and Comprehensive Healthcare: Expanding Technologies and Systems to Enable New Delivery Models
dc.subjectdata donation
dc.subjectdata-driven medicine
dc.subjectdata mobility
dc.subjectdata sovereignty
dc.subjectpersonalized healthcare
dc.titleData Sovereignty in Data Donation Cycles - Requirements and Enabling Technologies for the Data-driven Development of Health Applications
prism.startingpage3972

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Ubiquitous and Comprehensive Healthcare: Expanding Technologies and Systems to Enable New Delivery Models