RDS Volume 9, No. 2 & 3
Permanent URI for this collectionhttps://hdl.handle.net/10125/58094
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Item type: Item , Disability Studies Dissertation Abstracts(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Erlen, JonathonThe information for this section of RDS is provided by Jonathon Erlen of the University of Pittsburgh. A full list of disability-related dissertation abstracts may be found at http://www.hsls.pitt.edu/guides/histmed/dissertations/Item type: Item , Book review: Lovers Lame(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Brown, Steven E.Author: Robert Rudney Reviewer: Steven E. Brown, Ph.D. Publisher: Port Charlotte, FL: Booklocker.com, 2012 Paperback: ISBN: 978-1-61434-962-4 Cost: Paperback: $29.95, 270 pages; E-book: $8.99Item type: Item , Book Review: Perfect Chaos: A Daughter’s Journey to Survive Bipolar, a Mother’s Struggle to Save Her(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Crockett, CharmaineAuthors: Linea Johnson and Cinda Johnson Reviewer: Charmaine Crockett Publisher: New York: St. Martin’s Griffin 2012. ISBN #s: Hardcover: 9780312581824; Trade Paperback: 9781250023254; Ebook: 9781429948883 Cost: Hardcover, $24,99; Trade Paperback, $15.99; ebook: $9.99.Item type: Item , Book Review: The Silvering Screen: Old Age and Disability in Cinema(University of Hawaii at Manoa -- Center on Disability Studies, 2013) McLaughlin, AmandaAuthor: Sally Chivers Reviewer: Amanda T. McLaughlin Publisher: Toronto: University of Toronto Press, 2011 Paper: ISBN: 978-0-8020-1104-7 Cost: $24.95 from the publisher, 240 pagesItem type: Item , Book Review: The Problem Body, Projecting Disability on Film(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Raphael, RaphaelTitle: The Problem Body, Projecting Disability on Film Reviewer: Raphael Raphael, PhD Editors: Sally Chivers and Nicole Markotic Publisher: Columbus, OH: Ohio State University Press, 2010. Hardcover: ISBN: 13978-0-8142-1124-3 Cost: $69.95; 239 pages (inclusive of index)(may find less expensive copy at online booksellers):(Also available in electronic form as PDF file): $9.95Item type: Item , Wheelchair Basketball Teams as “Second Families” in Highland Ecuador(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Rattray, NicholasThis paper examines the concept of second families as social networks that complement primary families as forms of social support and identify formation. Based on analysis of narratives of three wheelchair basketball players, I argue that second families play a crucial role the performance of masculinity and personal development for physically disabled men.Item type: Item , Algorithms of Access: Immigrant Mothers Negotiating Educational Resources and Services for their Children(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Wilgus, Gay; Valle, Jan; Ware, LindaThis article draws upon the narratives of immigrant mothers (e.g., Japanese, Dominican, Filipina) of children with disabilities who reside in New York City. Common to each mother’s narrative is a description of her ongoing negotiation between cultural meanings of disability and the American conceptualization of disability and its institutionalized response to disability. In considering these narratives through a disability studies lens, we identify ways in which race, class, culture, and language impact immigrant mothers’ access to disability resources and services for themselves and their children.Item type: Item , Disablism and Diaspora: British Pakistani Families and Disabled Children(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Goodley, Dan; Runswick-Cole, Katherine; Mahanoud, UzmaThis paper explores the intersections of diaspora, disability and family. Drawing on qualitative interviews with the parents of three British Pakistani families we draw out three lines of enquiry. The first, disability and disavowal in Pakistan, explores parents’ relationship with ‘home’ and how this is complicated by the presence of disablism. The second, disability and the fight for care in Britain, explores the ways in which British Asian families are grounded not only in the cultures and traditions of their parents and the Asian subcontinent, but also in the social practices of Britain. The third, disability and diaspora - from isolation to ensembled caringscapes, examines the limits and possibilities offered through diaspora. One key affirmative element of this is the support of an extended family, which brings with it, the chance to look to the future with hope and possibility.Item type: Item , A Family Narration of Disability Experience in Iran(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Goodrich, Negin H.Focusing on Mohsen Hosseini Taha, a person with cerebral palsy, and his family, this research explores the social and mental consequences of having a member with physical disability on a typical Iranian family. The oral narratives used in this research have been collected in a series of in-depth interviews with Mohsen, his parents, and his only sister, in 4 sessions or 10 hours of face-to-face interviews. The analysis of the interviews addresses several questions: How was Mohsen’s disability initially diagnosed and what were his parents’ first reactions? What have been the social obstacles facing Mohsen’s family’s efforts to practice a routine life within Iranian society? How has Mohsen’s disability affected his family’s life socially and mentally throughout the years? Finally, how well do core concepts of Western disability studies apply within a typical non-western family? The real names of the participants have been used with their permission.Item type: Item , What’s Behind the Curtain? A Family’s Search for an Inclusive Oz(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Sauer, JanetFamilies are moving at ever increasing numbers. Relocating a family is challenging under any circumstance, but transitioning a child with a disability between schools, especially to new states or countries can be particularly difficult. When families seek full inclusion, the situation becomes more complex. This paper describes one American family’s journey through the moving process and how that process brought to the surface ways in which disability is socially and culturally constructed. Despite federal legislation in some countries regarding special education and the involvement of families, practices differ geographically, sometimes significantly, when determining eligibility, communicating with parents, and discussing how support services will be provided. The author - a parent, educational researcher, and instructor of pre-service teachers – asks questions throughout the family’s relocation and examines people’s “storylines” or habits of conversation (Gee, 1999) to get at underlying assumptions. Related research and implications for improving educational practices are discussed.Item type: Item , The ‘Othered’ Sister: Family Secrets, Relationships, and Society(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Jones, Melissa M.Through auto-ethnography, the intersection between family culture and a hegemonic culture of normalcy is explored. One sister’s investigation of disability, as manifested through shared family secrets, acts of resistance against the public stare, segregation and isolation, and notions of incompetence, unveil evidence of historical oppressive practices.Item type: Item , Growing Up: Disability and Cultural Dynamics in an Egyptian/American Family(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Youssef, Christine-MarieThis paper explores my personal narrative as a young adult woman in my mid-twenties with a visual disability. I describe my experiences and how disability generally is perceived in the Egyptian culture, in particular within the Egyptian Coptic Orthodox Christian community in the United States. The aim of this paper is to illuminate the impact of comments, gestures and overall treatment from this community’s people on its members with disabilities. The actions of close family members throughout various rites of passage at different stages of life is another central theme of this paper, for it highlights the impact of acceptance, overprotection, exposure, and independence on the daily life experiences of a person with a disability. I discuss how my values and assumptions as a person with a disability can sometimes conflict and other times coincide with those of my immediate, extended and religious families. While this paper explores the narrative of one individual, it has the potential to challenge people’s stereotypes and behaviors which may subsequently impact the lives of people with disabilities. As human beings, people with disabilities are all a part of various “families” whether religious, biological, or the (dis)ability-related communities. Overall, this paper explores my personal narrative, given the interaction of multiple components of identity—gender, race, age, religion and disability.Item type: Item , Memories and Re-Memories of My Mom’s Eye Bandage: Trans-Relation Among the Norms, Otherness, and Resistance(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Um, Su Jung; Won, Jong LyeA mother and daughter from South Korea construct re-memories about the mother’s visual impairment. The paper uses the concept of re-memory that Toni Morrison uses in her novel, Beloved: the act of revisiting a memory in order to reconstruct “past realities.” The aim is not to “tell” the story of what it means to live as a person with a visual impairment while being a single mother and working as a special educator in Korean society, or what it means to live as the daughter of that person. There is no attempt to claim an authoritative version of “our stories.” Instead the goal is to recognize our own social construction and cultural conditioning through re-reading our shared memories. Conceiving ourselves as sites for cultural critique and social change, the presentation will interrogate the ways in which mother and daughter have been constituted by historically, socially, and culturally specific discourses. The presentation will interrogate the ways in which our memories and experiences are enmeshed in a web of ableism, classism, sexism, and ageism. Finally, the paper will discuss what ethical work mother and daughter may/can do on themselves as educational researchers and teacher educators.Item type: Item , Introduction: Writing the Global Family, International Perspectives on Disability Studies and Family Narratives(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Ferguson, Philip; Sauer, JanetWe live in the Golden Age of the memoir. Everyone has a story to tell, and a growing number are finding their way to publication. The disability memoir has certainly been a part of this growth. It is refreshing to note how many of these recent narrative accounts of living with a disability have been written from what might be broadly termed a “disability studies perspective” taking on a more critical, socio-cultural orientation than the traditional ‘inspiration in the face of personal tragedy’ motif. The list of such accounts is growing (a very short and incomplete list would include works by Anne Finger (2006), Simi Linton (2006), Harriet McBryde Johnson (2005), Eli Clare (1999), Rod Michalko (1998), and Stephen Kuusisto (1998). Beyond the personal memoir, there has been a similar explosion of memoirs written by family members of individuals with disabilities (parents, siblings, and children). However, unlike the personal memoir, relatively few of these “family narratives” have adopted a clear disability studies perspective...Item type: Item , Editorial: What Ever Happened to Mary Ingalls?(University of Hawaii at Manoa -- Center on Disability Studies, 2013) Conway, MeganSince this issue features a forum on the family, I knew that I could easily write an editorial focused on my own family experiences. But then I realized that many of my editorials focus on my family! After all, my family is the most important thing in my life. Who wants to read another editorial about the exploits of my eight-year-old daughter? So instead I am going to focus on another family. They are the Ingalls family, and most interestingly, Mary Ingalls, the blind sister of the book and American TV show’s main protagonist, Laura Ingalls.Item type: Item , Review of Disability Studies: An International Journal Volume 9 Issue 2 & 3(University of Hawaii at Manoa -- Center on Disability Studies, 2013)This is Volume 9, Issue 2 & 3(double issue) from 2013.