Supporting Self-Management for Autism Spectrum Disorder through Telehealth

Abstract

Autism spectrum disorder (ASD) is a complex chronic condition, impacting the individual and their family, as they require life-long care starting at an early age. Self-management assists these individuals transition to adulthood without needing continued systematic support externally. Telehealth reduces the challenges these families experience when accessing self-management programs. However, current research on telehealth programs in this context are often aimed at early childhood or utilize a deficit-based approach to care, therefore fails to capture all aspects of self-management. This study employed a case-study approach to investigate how a clinically adopted telehealth program supports comprehensive self-management of autism. The results demonstrate the program provided self-management support through three processes: focusing on illness needs, activating resources and living with a chronic condition. The paper suggests further improvements are needed to achieve intended healthcare outcomes for the child and their families.