Self-management of Chronic Diseases and Conditions

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https://hdl.handle.net/10125/102542

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    #MyIBDHistory on Twitter: Identifying Disease Characteristics Using Personal Tweets
    ( 2023-01-03) Stemmer, Maya ; Ravid, Gilad ; Parmet, Yisrael
    Inflammatory bowel disease (IBD) is usually classified into Crohn's disease (CD) or ulcerative colitis (UC). Inconclusive cases are diagnosed with IBD unclassified (IBD-U). In 2018, IBD patients shared their disease history on Twitter and signed their tweets with #MyIBDHistory. In this research, we analyzed those tweets and built a logistic regression classifier that predicts patients' IBD type. We constructed tabular classification features and assessed their importance using the regression coefficients and association rules. We identified key features that distinguished CD from UC and used the classifier to predict the disease type of IBD-U patients. Our results correlated with IBD-related research. The two most prominent features that tilted the classification towards CD were suffering from fistulas or nutrient deficiencies. We identified gender differences in disease perspective prior to diagnosis. The research shows that the personal information shared by patients on Twitter can enhance existing medical knowledge regarding their disease.
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    Introduction to the Minitrack on Self-management of Chronic Diseases and Conditions
    ( 2023-01-03) Dadgar, Kourosh ; Samhan, Bahae ; Joshi, K.D.
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    Designing an Artifact to Empower Chronic Patients for Monitoring Health During a Pandemic: A COVID-19 Screening App
    ( 2023-01-03) John, Blooma ; Jose, Savio ; Thomas, Jackson ; Kurian, Jayan
    Chronic diseases have been declared an invisible epidemic by the World Health Organization (WHO, 2005). Over the past fifty years, the prevalence of chronic conditions has increased, leading to the disease burden caused by cancer, cardiovascular diseases, diabetes, and mental and substance use disorders (DOH, 2021). Chronic patients need to reimagine how they will empower themselves to effectively manage and monitor their health and wellbeing in a COVID-19 era when frequent in-person health care visits will no longer be feasible. In this study, we propose the dimensions for the design of a mobile-based application that will aid chronic patients and end-users in self-managing and monitoring their health during the pandemic era. Based on an empirical investigation involving pharmacists and researchers, we designed and developed a prototype capable of empowering chronic patients. This study particularly focuses on how technological interventions can help chronic patients self-manage and monitor their health and well-being related to COVID-19 where the user expectations are met with less attrition rates.