RDS Volume 13, No. 4
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Item Review of Disability Studies: An International Journal Volume 13 Issue 4(University of Hawaii at Manoa -- Center on Disability Studies, 2017)From Canada to India, Guatemala to Germany, this special issue includes a research forum on Cripping Care: Care Pedagogies and Practices,” as well as multimedia, creative works, and a selection of the latest in disability studies’ dissertations & abstracts.Item Editorial: Is this a Marriage or a Carriage?(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Conway, Megan A.Musings on the meaning of "care" and gender roles.Item Dissertation & Abstracts v13i4(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Erlen, Jonathon; Conway, MeganItem A Question & Answer with Helen S. Cohen, Filmmaker of States of Grace(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Raphael, RaphaelThis article provides a brief discussion with the filmmaker Helen S. Cohen about her process creating States of Grace, a documentary that, over the course of four years, documents the rehabilitation of a physician critically injured in a car crash. The article including what Cohen has learned about disability in the process, the remarkable reactions she has received from others who have seen the film, and how this film fits in the larger trajectory of her practice as a filmmaker.Item Cancer Kung Fu: Fighting Back Through Writing and Drawing(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Faroqhi, AnnaFaroqhi describes the ways in which writing and drawing her graphic novel Krebs Kung Fu (Cancer Kung Fu) served as powerful coping mechanism during her diagnosis and subsequent treatment for cancer.Item Cripping Care: Care Pedagogies and Practices(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Douglas, Patty; Rice, Carla; Kelly, ChristineItem What is a Service Animal? A Careful Rethinking(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Price, MargaretI argue that the discursive tactics used to maintain a clear boundary between “legitimate” and “illegitimate” service animals rely on a set of assumptions that perpetuate unequal relations of power, and ultimately harm others (human and nonhuman alike). In support of this argument, I outline my theory of crip spacetime, which draws upon the material feminist notion that disability is an intersectional and emergent phenomenon, becoming (rather than being) through intra-active environments. Thinking through the ontology of service animals and their human companions in terms of crip spacetime demands that we apply what Christine Kelly (2016) has called accessible care in relationships.Item Teaching and Care: Cripping Fieldwork in Teacher Education(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Baglieri, Susan; Bacon, JessicaProviding teacher candidates early and ongoing opportunities to learn their profession by participating in school settings is often posed as a way to improve their preparedness for becoming teachers. Two problems of “fieldwork,” however, are the limited access to settings in which inclusive education is practiced and the milieu of special education in the US that emphasizes ableist assertions of independence, support, and conventional notions of care, especially for youth characterized as intellectually disabled. We present an overview of the establishment of a “cripped” fieldwork experience for early program teacher candidates enrolled in a required undergraduate course. By engaging in qualitative narrative analysis of candidates’ journals, we report preliminary findings on evolving notions of care related to disability and education in self-reported field-based learning.Item Cripping Care for Individuals with Psychiatric Disability: Looking Beyond Self-Determination Frameworks to Address Treatment and Recovery(University of Hawaii at Manoa -- Center on Disability Studies, 2017) O'Leary, Meghann ElizabethThis paper seeks to intervene in mental health discourses of self-determination as well as disability studies discourses concerning care. Attending to the material, gendered, and racialized individual care needs of living, cooking, cleaning, working, and raising children is an affirmative step towards alleviating the difficulties in navigating mental distress and treatment for white women and, especially, women of color in the global north.Item Too Much or Too Little? Paradoxes of Disability and Care Work in India(University of Hawaii at Manoa -- Center on Disability Studies, 2017) Ghosh, Nandini; Banerjee, SupurnaThe notion of care often normalizes within it violence that can have devastating effects on the lives of disabled people. Cripping care critiques the normalization of such notions of care. This paper articulates this paradox of care within the lived experiences of disabled girls and their mothers as primary carers. Through extensive case studies of young, disabled girls and their carers in villages of West Bengal, Jharkhand, and Odisha in India—where abject poverty, lack of resources, and a dearth of sensitized social relationships remain entrenched—this paper problematizes care relationships, moving beyond social model approaches to include understandings from the Global South of what it might mean to crip care. The paper explores care relationships within the family, which valorize the emotional and physical labor of women in the garb of motherhood while negating the personhood of disabled daughters. While the care relationship between mother and daughter is enhanced by the affective bonds of empathy, emotional responsiveness, and perceptual attentiveness that transform intimate tasks into relationships of trust and demonstrations of trustworthiness, in the unforgiving realities of rural poverty in India the collective act of survival of such families needs to be contextualized within the debates about cripping care.