ICT-enabled Self-management of Chronic Diseases and Conditions

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    Games as Systems for Rehabilitation: A Design Strategy for Game-based Exercise Rehabilitation for Parkinson's Disease
    ( 2020-01-07) Tece Bayrak, Asli ; Wuensche, Burkhard ; Reading, Stacey A. ; Lutteroth, Christof
    Games are of interest for health interventions including but not limited to physical activity and rehabilitation, behavior change, motor-cognitive training, and mood elevation. Despite increased interest in using games to produce positive health outcomes, the development or selection process of games, or their suitability for a target demographic in a context of health and rehabilitation, remains ad-hoc. As a result, game-based interventions lacking application specificity produce variable outcomes that obscure the true treatment effect of game-based therapies. To address this issue, we present a design strategy for game-based rehabilitation that uses a player-centric approach to develop/select games for specific contexts such as for improving functional deficits in patients with Parkinson’s disease. This strategy establishes a relationship between the exercise rehabilitation regimen and gameplay by incorporating the rehabilitation requirements, patient condition, and player affordances, into the game world. In addition, we present guiding questions to support the application of the design strategy for improving the effectiveness of game-based rehabilitations.
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    Improving the Patient-Physician Dialogue through Health Information Systems (HIS): Misconceptions and Miscommunication
    ( 2020-01-07) Kishik, Sharon ; Müller, Sune ; Stampe, Kathrine
    This paper looks at the use of Health Information Systems (HIS) from a communication perspective. Drawing on Niklas Luhmann’s systems theory, we analyze patients’ self-observations in relation to their disease, as well as physicians’ observations of PRO data collected via a mobile application. Based on the analysis, we argue that patient-physician miscommunication occurs, and that the premises of HIS supported information sharing rest on a too simplistic conceptualization of communication. Conclusively, we discuss the implications for the use of HIS instruments in support of patient-physician information sharing, communication, and understanding.
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    Systematic Review of Social Networking Support Groups for Genetic-Disorders Pain Management
    ( 2020-01-07) Ashtari, Sadaf ; Taylor, Joseph ; Lai, Glen
    The pervasive opioid crisis in the United States highlights the challenges that many individuals have with pain management. One population that struggles with pain management are communities that experience genetic disorders. In this paper we present a literature review that examines the findings of the extant literature regarding pain management for genetic disorders on social media. We find that while research regarding social media in healthcare management has been increasing, there are still relatively few papers that address social media and pain management, We present a research agenda for the study of pain management techniques enabled by social media.
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