Trends in Patient Generated Data – An Initial Review

Abstract

In recent years, patient-centered care has gained significant momentum in healthcare and the patient is more involved as an active participant in data generation. In this state of the art review we identify trends in patient generated data (PGD) and areas in need of further research by reviewing papers published in the health tracks of five high-ranked IS conferences. Our results suggest that research is mostly empirically grounded and primarily focuses on sickness rather than wellness issues. There is an emphasis on chronic diseases and self-management, dealing with user motivation, and a focus mostly on mobile apps. Though technology plays an important part, there is scarce problematization of and theorization on PGD. Further studies are needed that investigate the effects of PGD on patients and healthcare providers, include a wider range of issues and incorporate wearable devices more comprehensively.