Infrastructural and network support in the illness experience: The role of community crowdsourcing in self-care

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dc.contributor.authorBritt, Rebecca
dc.contributor.authorDoss, Erin Faith
dc.contributor.authorHayes, Meredith
dc.date.accessioned2022-12-27T19:08:12Z
dc.date.available2022-12-27T19:08:12Z
dc.date.issued2023-01-03
dc.description.abstractSocial sharing within pseudonymous online communities can assist- or hinder- the self-management of health care and emphasize challenges associated with chronic illness. For those who are affected by chronic illness who participate in a public online community, the breadth of topics discussed in a corpus of a pseudonymous group can lend insight into tracking the interaction processes and outcomes. Examining the topics discussed in the endometriosis subreddit (r/endo) informs public health strategies as well as ethical considerations in health care surrounding stigmatized illness in a public community. In the present study, the data corpus of r/endo was analyzed and scraped, employing computational data mining techniques to uncover the discursive practices within the community. The topics of self-management is constructed by diagnosed and undiagnosed patients; endometriosis etiology and understanding symptoms negotiated within the community. In an online community for those who face unique health challenges from endometriosis, we argue that users engage in a form of community crowdsourcing via information exchange and network support, spurred by the platform affordances of Reddit.
dc.format.extent10
dc.identifier.doi10.24251/HICSS.2023.412
dc.identifier.isbn978-0-9981331-6-4
dc.identifier.urihttps://hdl.handle.net/10125/103043
dc.language.isoeng
dc.relation.ispartofProceedings of the 56th Hawaii International Conference on System Sciences
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectSocial Media and Healthcare Technology
dc.subjectcommunity crowdsourcing
dc.subjectnetwork support
dc.subjectonline communities
dc.subjectsocial support
dc.titleInfrastructural and network support in the illness experience: The role of community crowdsourcing in self-care
dc.type.dcmitext
prism.startingpage3348

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