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Understanding Caregivers of Native Hawaiian Kūpuna with Age-Related Memory Loss on One Hawaiian Homestead.

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Title:Understanding Caregivers of Native Hawaiian Kūpuna with Age-Related Memory Loss on One Hawaiian Homestead.
Authors:Dillard, Adrienne Y.
Contributors:Social Welfare (department)
Keywords:Alzheimer’s Disease
Native Hawaiian
Hawaiian Homestead
show 1 moreKūpuna
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Date Issued:Aug 2018
Publisher:University of Hawaiʻi at Mānoa
Abstract:Understanding the concerns and challenges of caregivers of Native Hawaiian
kūpuna or elders (age 55 years and older) with age-related memory loss conditions,
specifically, Alzheimer’s Disease and Related Dementia (ADRD), on one Hawaiian
Homestead is the focus of this doctoral research study. ADRD is known to affect memory,
thinking, and behavior. This research is grounded in Community-Based Participatory
Research (CBPR) principles and utilizes a mixed methods strategy to assess the needs
and concerns of caregivers.
This mixed methods study utilizes a quantitative arm of the study involving
development and administration of a written survey eliciting sociodemographic
characteristics, as well as knowledge-attitudes-behaviors on caregiving. The qualitative
arm of the study is with focus groups intended to clarify and extend information learned
through survey data. Study findings can assist a homestead community in determining
the types of resources and support essential for long-term care to mitigate caregiver
burnout and simultaneously provide services that enhance kūpuna care. Results will
inform providing safe, compassionate, community-based culturally appropriate care in
the community for kūpuna who prefer to age in place.
This dissertation research aligns with the focus of social welfare on health equity
and cultural competence focusing on Native Hawaiians, a marginalized population and the
need to provide relevant ADRD services for all. Further, this research contributes to the
growing literature on aging in place from an Indigenous (Native Hawaiian) cultural
perspective. This research underscores the importance of community “self”-determination.
Specifically, study results indicate the cultural preference is caring for kūpuna is a
community kuleana (responsibility). By extension, there is a need for community training
that strengthens the capacity to address this kuleana. Current and emerging community
leaders from across the generational continuum would benefit from training that ensures
community participation in identifying moreover, addressing kūpuna needs, as served in a
spirit of caring and excellence. Findings from this study are community-specific and
cannot be generalized to all Native Hawaiians and Native Hawaiian communities. Research
performed in one urban homestead community may provide critical considerations for
others interested in developing policy and research for/with elders and family caregivers
in the context of ADRD.
Description:Ph.D. Thesis. University of Hawaiʻi at Mānoa 2018.
Rights:All UHM dissertations and theses are protected by copyright. They may be viewed from this source for any purpose, but reproduction or distribution in any format is prohibited without written permission from the copyright owner.
Appears in Collections: Ph.D. - Social Welfare

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