Please use this identifier to cite or link to this item: http://hdl.handle.net/10125/56557

Ethno-Cultural Differences in Later-Life Caregiving Expectations, Caregiver Burden, Family Dynamics, and Healthcare Decision-Making Factors

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Title:Ethno-Cultural Differences in Later-Life Caregiving Expectations, Caregiver Burden, Family Dynamics, and Healthcare Decision-Making Factors
Authors:Lee, Mark
Contributors:Onoye, Jane M. (advisor)
Mathematics (department)
Keywords:Family Caregiving
Healthcare Decision-Making
Ethno-cultural
Date Issued:May 2016
Publisher:University of Hawaii at Manoa
Abstract:Background: In the qualitative literature, Asians and Pacific Islanders (APIs) were generalized to highly value collectivism, suggesting that APIs may have more caregiving responsibilities and obligations, caregiver burden, and group decision-making compared to the general population. Methods: A stratified random sample of Euro-American, Japanese, Chinese, and Native Hawaiian children-generation participants (n=106) from the 1970s Hawaiʻi Family Study of Cognition cohort was surveyed on measures of family dynamics, caregiver burden, caregiving expectations, actual caregiving responsibilities, importance of healthcare decision-making factors, proximity to parents, communication with parents, and demographics. A subset of survey participants (n=10) was interviewed by phone to provide further context on their families’ caregiving and healthcare decision-making. Results: APIs were significantly more likely to perceive an expectation to be a family caregiver compared to Euro-Americans. Also, there was a trend for Native Hawaiians being more likely to have actual caregiving and/or decision-making responsibilities compared to Euro-Americans. Qualitative findings, such as a theme for reluctance to use nursing services among APIs, supported these quantitative results. Qualitative analyses provided additional insights into family caregiving and decision-making, including a theme for caregiving duties to be delegated based on circumstantial considerations, and only when caregiving needs arose. Discussion: Since some API ethnic groups are more likely to have caregiving expectations and/or caregiving duties, culturally-competent support services for API caregivers may be needed. Qualitative findings also suggest that prevention/intervention strategies for caregiver burden may be helpful for all families, including outreach programs that facilitate long-term planning for later-life healthcare services and caregiving.
Pages/Duration:94 pages
URI:http://hdl.handle.net/10125/56557
Rights:All UHM Honors Projects are protected by copyright. They may be viewed from this source for any purpose, but reproduction or distribution in any format is prohibited without written permission from the copyright owner.
Appears in Collections: Honors Projects for Mathematics


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